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Is There an FTD Strategy in Canada? Understanding the Laws, Policies, and What's Still Missing
Frontotemporal dementia (FTD) affects thousands of Canadians and is one of the most common forms of young-onset dementia. Yet many people are surprised to learn that Canada does not have legislation specifically dedicated to FTD. Instead, FTD is included within broader dementia legislation and national policies. While this means people living with FTD are recognized in Canada's approach to dementia care, it also raises an important question: Does a broad dementia strategy ade
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The Cost of Being Wrong: Why Frontotemporal Dementia Is Too Often Misdiagnosed in Canada
Imagine watching someone you love slowly change before your eyes. They become impulsive, lose empathy, struggle to communicate, or begin making decisions that seem completely out of character. Friends assume it's stress. Employers think it's burnout. Doctors diagnose depression, bipolar disorder, anxiety, menopause, or even a midlife crisis. Years later, the truth finally emerges: it was never a mental health condition. It was Frontotemporal Dementia (FTD). For far too many C
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Frontotemporal Dementia: The Invisible Disease That Too Often Costs People Their Careers
Imagine walking into work one day and noticing that your colleague has changed. They seem more impulsive, forgetful, emotionally distant, or they begin saying things that feel inappropriate or out of character. Their work performance declines, relationships become strained, and whispers begin circulating through the office. Most people assume stress. Burnout. Depression. Laziness. A bad attitude. What few people consider is that these could be the first signs of Frontotempora
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When “It’s Not Alzheimer’s”: Why Canada’s Medical Community Must Deepen Its Understanding of FTD
Frontotemporal dementia (FTD) is one of the most misunderstood and under-recognized neurodegenerative diseases in Canada. For families, the journey to diagnosis is often long, confusing, and emotionally devastating. For medical professionals, it can be an uncomfortable clinical challenge; rare, complex, and lacking a single definitive diagnostic test during life. But that discomfort cannot become inaction. If we are to truly support patients and families living with FTD, we m
4 min read
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