Every April, National Volunteer Week shines a spotlight on the people who give their time to strengthen communities across Canada. For organizations focused on rare diseases like FTD (Frontotemporal Dementia), volunteers aren’t just helpful, they are essential. FTD is a complex and often misunderstood condition. Unlike more widely recognized forms of dementia, it tends to affect younger individuals and presents with changes in behavior, personality, and language. Because of t

Yesterday in the chamber of the Legislative Assembly of Manitoba, something quietly historic happened. During a Private Member’s Statement, Frontotemporal Dementia (FTD) was recognized on the legislative record, what appears to be the first time the disease has been specifically acknowledged in a legislative chamber anywhere in Canada. For many people, it may have sounded like a brief moment in the routine of legislative proceedings. But for families living with FTD, it repre

Progressive Supranuclear Palsy (PSP) is a rare and complex brain disorder that affects movement, balance, vision, thinking, and behavior. Because many of its early symptoms resemble those of Parkinson's disease , PSP is often misunderstood or misdiagnosed in its early stages. For individuals living with PSP, and for their families, the condition can feel confusing and overwhelming. Learning to recognize the signs and understanding how the disease progresses can help people se