Imagine watching someone you love slowly change before your eyes. They become impulsive, lose empathy, struggle to communicate, or begin making decisions that seem completely out of character. Friends assume it's stress. Employers think it's burnout. Doctors diagnose depression, bipolar disorder, anxiety, menopause, or even a midlife crisis. Years later, the truth finally emerges: it was never a mental health condition. It was Frontotemporal Dementia (FTD). For far too many C

Every year, organizations across Canada receive funding, donations, and public trust to improve the lives of people affected by dementia. They educate, advocate, and influence policy. They speak on behalf of the dementia community. But here's the question we need to ask: Who is being heard? For Canadians living with frontotemporal dementia (FTD), the answer is too often not us. FTD is one of the most devastating forms of dementia. It frequently affects people in their 40s, 50

Frontotemporal dementia (FTD) is one of the most misunderstood and under-recognized neurodegenerative diseases in Canada. For families, the journey to diagnosis is often long, confusing, and emotionally devastating. For medical professionals, it can be an uncomfortable clinical challenge; rare, complex, and lacking a single definitive diagnostic test during life. But that discomfort cannot become inaction. If we are to truly support patients and families living with FTD, we m