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FTD and Genetic Testing: Understanding the Genes, the Spectrum of Disease, and Why Research Matters
Frontotemporal dementia (FTD) is often described as a single disease, but it is better understood as a family of neurodegenerative disorders that can affect behavior, personality, language, movement, and cognition. For some families, genetics plays a major role. For others, there is no identifiable genetic cause. Understanding the connection between FTD and genetics can help families make informed decisions about genetic testing, better understand patterns of disease within a
6 min read


Accessibility Matters: Travelling in Canada When Disability Isn’t Always Visible
Travel is supposed to be about experiencing new places, making memories, attending concerts, visiting family, exploring cities and enjoying everything Canada has to offer. But for people living with frontotemporal degeneration (FTD), travel can come with barriers that many people simply cannot see. FTD is a group of progressive neurological conditions that can affect behaviour, personality, executive functioning, language, communication and movement. Someone living with FTD m
6 min read


Understanding Corticobasal Syndrome (CBS)
Corticobasal syndrome (CBS) is a rare brain disorder that mainly affects movement. It belongs to a group of conditions called frontotemporal degeneration (FTD). These disorders damage parts of the brain responsible for movement, behavior, and language. Some of the symptoms of CBS are similar to those seen in Parkinson’s disease, which is why it is sometimes described as a type of “atypical Parkinsonism.” What Happens in Corticobasal Syndrome? In CBS, certain areas of the brai
3 min read
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