Frontotemporal dementia (FTD) is often described as a single disease, but it is better understood as a family of neurodegenerative disorders that can affect behavior, personality, language, movement, and cognition. For some families, genetics plays a major role. For others, there is no identifiable genetic cause. Understanding the connection between FTD and genetics can help families make informed decisions about genetic testing, better understand patterns of disease within a

When Canadians think about dementia, most think of memory loss and Alzheimer's disease. Yet thousands of individuals and families across the country are facing a lesser-known and often misunderstood condition: Frontotemporal Dementia (FTD). FTD is the most common form of dementia diagnosed in people under the age of 60, yet awareness of the disease remains alarmingly low. For many families, the journey begins with years of confusion, misdiagnosis, and isolation. Without great

For anyone affected by frontotemporal degeneration (FTD) , including frontotemporal dementia (FTD) , behavioral variant FTD (bvFTD) , primary progressive aphasia (PPA) , progressive supranuclear palsy (PSP) , corticobasal degeneration (CBD/CBS) , or FTD with motor neuron disease (FTD-ALS) finding reliable information and support can be challenging. That’s why the FTD Disorders Registry stands out as a key resource for patients, caregivers, family members, and the medical an