Frontotemporal dementia (FTD) is a lesser-known but deeply impactful form of dementia that primarily affects the frontal and temporal lobes of the brain. Unlike Alzheimer’s disease, which often begins with memory loss, FTD tends to first alter behavior, personality, language, and decision-making. Because it frequently develops earlier in life—often between the ages of 45 and 65 it can disrupt careers and financial stability at a particularly critical stage. The Workplace Chal

For anyone affected by frontotemporal degeneration (FTD) , including frontotemporal dementia (FTD) , behavioral variant FTD (bvFTD) , primary progressive aphasia (PPA) , progressive supranuclear palsy (PSP) , corticobasal degeneration (CBD/CBS) , or FTD with motor neuron disease (FTD-ALS) finding reliable information and support can be challenging. That’s why the FTD Disorders Registry  stands out as a key resource for patients, caregivers, family members, and the medical an

Yesterday in the chamber of the Legislative Assembly of Manitoba, something quietly historic happened. During a Private Member’s Statement, Frontotemporal Dementia (FTD) was recognized on the legislative record, what appears to be the first time the disease has been specifically acknowledged in a legislative chamber anywhere in Canada. For many people, it may have sounded like a brief moment in the routine of legislative proceedings. But for families living with FTD, it repre

Behavioral variant frontotemporal dementia (bvFTD)  is the most common type of frontotemporal dementia (FTD) , accounting for about half of all FTD cases. It is sometimes also called frontotemporal dementia  or Pick’s disease . What makes bvFTD different from many other dementias is that the earliest changes usually involve personality, behavior, and social awareness , rather than memory. A person may begin acting very differently from how they used to, sometimes in ways that

Frontotemporal dementia (FTD) is one of the most misunderstood and under-recognized neurodegenerative diseases in Canada. For families, the journey to diagnosis is often long, confusing, and emotionally devastating. For medical professionals, it can be an uncomfortable clinical challenge; rare, complex, and lacking a single definitive diagnostic test during life. But that discomfort cannot become inaction. If we are to truly support patients and families living with FTD, we m

As we approach Rare Disease Day on February 28 , we are reminded why raising our voices matters. Rare diseases may be individually uncommon, but collectively they affect millions of people worldwide and thousands of families here at home. They are our parents, siblings, partners, friends, coworkers, and neighbours. Behind every diagnosis is a family navigating uncertainty, searching for answers, advocating for care, and holding onto hope. For families affected by frontotempor