When people hear the word “dementia,” many immediately think of memory loss. But dementia is not one single condition, nor does it affect everyone the same way. True inclusivity means understanding that people living with dementia experience the world differently — and that every experience deserves dignity, respect, and support. At FTD Canada, we believe inclusivity goes beyond accessibility ramps, large-print resources, or supportive language. Inclusivity also means recogni

Every April, National Volunteer Week shines a spotlight on the people who give their time to strengthen communities across Canada. For organizations focused on rare diseases like FTD (Frontotemporal Dementia), volunteers aren’t just helpful, they are essential. FTD is a complex and often misunderstood condition. Unlike more widely recognized forms of dementia, it tends to affect younger individuals and presents with changes in behavior, personality, and language. Because of t

As we approach Rare Disease Day on February 28 , we are reminded why raising our voices matters. Rare diseases may be individually uncommon, but collectively they affect millions of people worldwide and thousands of families here at home. They are our parents, siblings, partners, friends, coworkers, and neighbours. Behind every diagnosis is a family navigating uncertainty, searching for answers, advocating for care, and holding onto hope. For families affected by frontotempor