A diagnosis of frontotemporal dementia (FTD) can feel overwhelming, disorienting, and even isolating. But one truth matters above all: you are not alone. Across the world, individuals, families, care partners, and professionals are navigating this journey together—learning, adapting, and building supportive communities along the way. While an FTD diagnosis may answer some long-standing questions, it often introduces many new ones. It marks the beginning of a path that require

What Is FTD-ALS? FTD-ALS occurs when symptoms of both frontotemporal dementia and amyotrophic lateral sclerosis develop in the same individual. Each disease affects different parts of the nervous system. FTD primarily damages the frontal and temporal lobes of the brain. These areas are responsible for personality, behavior, decision-making, and language. ALS, on the other hand, attacks the motor neurons that control voluntary muscles, leading to progressive muscle weakness. B

Yesterday in the chamber of the Legislative Assembly of Manitoba, something quietly historic happened. During a Private Member’s Statement, Frontotemporal Dementia (FTD) was recognized on the legislative record, what appears to be the first time the disease has been specifically acknowledged in a legislative chamber anywhere in Canada. For many people, it may have sounded like a brief moment in the routine of legislative proceedings. But for families living with FTD, it repre

Behavioral variant frontotemporal dementia (bvFTD)  is the most common type of frontotemporal dementia (FTD) , accounting for about half of all FTD cases. It is sometimes also called frontotemporal dementia  or Pick’s disease . What makes bvFTD different from many other dementias is that the earliest changes usually involve personality, behavior, and social awareness , rather than memory. A person may begin acting very differently from how they used to, sometimes in ways that