Imagine watching someone you love slowly change before your eyes. They become impulsive, lose empathy, struggle to communicate, or begin making decisions that seem completely out of character. Friends assume it's stress. Employers think it's burnout. Doctors diagnose depression, bipolar disorder, anxiety, menopause, or even a midlife crisis. Years later, the truth finally emerges: it was never a mental health condition. It was Frontotemporal Dementia (FTD). For far too many C

Every year, organizations across Canada receive funding, donations, and public trust to improve the lives of people affected by dementia. They educate, advocate, and influence policy. They speak on behalf of the dementia community. But here's the question we need to ask: Who is being heard? For Canadians living with frontotemporal dementia (FTD), the answer is too often not us. FTD is one of the most devastating forms of dementia. It frequently affects people in their 40s, 50