Frontotemporal dementia (FTD) affects thousands of Canadians and is one of the most common forms of young-onset dementia. Yet many people are surprised to learn that Canada does not have legislation specifically dedicated to FTD. Instead, FTD is included within broader dementia legislation and national policies. While this means people living with FTD are recognized in Canada's approach to dementia care, it also raises an important question: Does a broad dementia strategy ade

Imagine watching someone you love slowly change before your eyes. They become impulsive, lose empathy, struggle to communicate, or begin making decisions that seem completely out of character. Friends assume it's stress. Employers think it's burnout. Doctors diagnose depression, bipolar disorder, anxiety, menopause, or even a midlife crisis. Years later, the truth finally emerges: it was never a mental health condition. It was Frontotemporal Dementia (FTD). For far too many C

Every year, organizations across Canada receive funding, donations, and public trust to improve the lives of people affected by dementia. They educate, advocate, and influence policy. They speak on behalf of the dementia community. But here's the question we need to ask: Who is being heard? For Canadians living with frontotemporal dementia (FTD), the answer is too often not us. FTD is one of the most devastating forms of dementia. It frequently affects people in their 40s, 50

Imagine walking into work one day and noticing that your colleague has changed. They seem more impulsive, forgetful, emotionally distant, or they begin saying things that feel inappropriate or out of character. Their work performance declines, relationships become strained, and whispers begin circulating through the office. Most people assume stress. Burnout. Depression. Laziness. A bad attitude. What few people consider is that these could be the first signs of Frontotempora

When Canadians think about dementia, most think of memory loss and Alzheimer's disease. Yet thousands of individuals and families across the country are facing a lesser-known and often misunderstood condition: Frontotemporal Dementia (FTD). FTD is the most common form of dementia diagnosed in people under the age of 60, yet awareness of the disease remains alarmingly low. For many families, the journey begins with years of confusion, misdiagnosis, and isolation. Without great

Understanding Behavioural Changes, Public Safety, and the Need for Better Canadian Supports Most Canadians are familiar with Alzheimer's disease and the memory loss that often accompanies it. Far fewer understand behavioural variant Frontotemporal Dementia (bvFTD), a devastating neurological disease that can fundamentally alter a person's personality, judgment, impulse control, and social behaviour. For families, the experience can be shocking. A once-kind spouse may become v